Where to start? SOOO much has happened in the last few weeks. First the good news…..we got the house! We are still in Kingwood, and still close to all of our wonderful friends. Jake and Amer started school again, and Arielle is 6months old, says a few words, has 2 teeth (and more coming in), and is crawling all over! All of this has been happening while we are moving, or at least starting to move. The BIG push for moving will be this weekend. So if anybody is in the Kingwood area with a truck, trailer, or just a strong back, we need you!
Katy has been fitted for her leg prosthetics! Her wounds are healing so much faster than anyone could have guessed, and everyone, from the doctors on down, are amazed by her healing. Her hip still gives her a lot of pain, but we are working through it. She stood up on Monday, with the help of the prosthetists and her nurse, but it is still the first time she stood up since February. She is supposed to be entering TIRR’s rehab center on the 12th for her 2 week boot camp. I would like to say a HUUUGGEEE Thanks to Ted Muilenburg, and all of the staff at Muilenburg Prosthetics. These folks are like family to us now, and the attention to detail, and Katy’s needs, goes WAY beyond what was expected. They are great people, and we feel blessed to have gotten to know them.
Now for the $h!t we have been dealing with. The wonderful folks at the Social Security Administration have started sending us letters telling us that if we don’t turn in certain paperwork that Katy will be declined for future SSI, and no longer received Medicaid. The thing is that the papers they are requesting have been turned in TWICE before. Now I am running around collecting copies of taxes, bank statements, and trust documents, all of which have been turned in before. I asked how on Earth they could lose documents containing such pertinent information such as social security numbers, birthdays, legal names, etc. They have no good answers. I have contacted an attorney, and we will be requesting another case manager. I do not feel as though this person is competent at their job, and I fear that relying on this person for my wife’s medical needs will only result in bad things.
That is the news for now. We will be having a house warming party soon, so keep looking for posts.
Love to all,