Our first weekend home was much enjoyed. I know that Katy needed this time to recharge before we head to TIRR for rehab and meetings with the prosthetist. The kids are so happy to have Katy home, and Arielle is a dream baby. She actually sleeps through the night, and she rolled over on her own, today! It feels GREAT to be home.
As good as things have been going, there is always paperwork to be done! I wonder who designs the administrative paperwork for SSI, Medicaid, etc? The questions asked are often triple negatives. An example is, and this was an ACTUAL question asked on an application for aid-
“Is it, or is it not, true, that the patient will, or will not, be able to return to their previous line of work, or a new profession? Yes / No”
I WISH I was making this up! Even the poor lady who is our representative for this process was confused. I would think to circle each of the appropriate responses, butI was given VERY SPECIFIC instructions to NOT write ANYTHING on any questions. It is rediculous. Now I’m getting letter saying that we are not qualified for said program, followed by welcome letters. It is truly a maddening process. We have been so fortunate to have amazing friends and family, and to have been part of a great community, but I wonder what people do if they are new to an area, or if they don’t have a support network? I won’t bore anyone with my opinions about true healthcare reform, but a common sense approach to anything involving our government is nowhere to be found. I still haven’t heard from Ted Poe. I have received a ton of surveys, and bulk e-mails, yet not one response, even from a staffer, about my e-mail. Hard to be active in the process if there is no communication from the other side. Unfortunately, this is also not the first time I have written to my elected officials, and NONE of them have EVER replied. Thoughts?
I digress. Katy and I are truly blessed to have the friends and family that we do, and Katy will become independant again. We have had a few people express concern that she will never walk, or have two functioning arms because “most people don’t.?” As I told the doctors in the beginning, “You don’t know my wife.” I can’t wait for all the naysayers to see her succeed. I want them to see her progress, not to rub it in, but to inspire them to a more optimistic approach to life, and a more aggressive approach to medicine.
Oh well, now I am just rambling. I guess I am more tired than I thought. I will write more soon.
Love to all,