I know it has been a while since the last blog, but there are good reasons. The first reason is that SO much has been happening! It seems that there is something always (and I do mean always) happening in Katy’s room. She has meds delivered 4 times a day, vitals every 2 hours, blood sugar 3 times a day, 3 therapies, the doctors rounding, financial, psych, pastoral, wound care, bedding change, administrative visitors, and the ever-present threat of visits by members of the press……aggghhhh! Even with signs indicating not to come in the room from 10pm-2am, and not to enter without knocking, members of the staff just barge in at ALL hours. This constant intrusion has made Katy want to check out of this hotel more than a few times. She says that she is tired of being poked and prodded. That being said, she has made some great progress.
Katy’s OT/PT sessions are going very well. The movement in her shoulders is getting better, as is the strength of her movements. We started off by moving her from bed to wheelchair by using a hoyer lift (crane lift). Today we made another advancement in moving her. One of the reasons that I haven’t written was that I was in Houston for about 36 hours. I had to keep it a secret so that I could surprise my students at Pin Oak. It was the last concert of the year for the Stage Band, and it was great to see everyone! The kids had an amazing concert! I was so proud of how far these young musicians have come! While I was down there, I snuck in a little visit with all 3 kids. While at the house, I also got to eyeball some measurements around the house. I figured out the best way to get Katy in the house/car, and how to transport her from the car to the chair without a big crane lift. I discussed this with the PT team, and we did a couple of mock runs. I was able to lift Katy from bed, and put her in the wheelchair and then the bathing chair. She did PT/OT, and then I was able to put her back into bed. Tomorrow we are going to go to the 1st floor and actually put her in our car, and then back into the chair. Exciting!
Another thing that has changed in the last day…Katy no longer has a trach! They did a capping trial, which she passed, and then took the trach out this morning. She is breathing so much better without the trach in her throat! The really big news came from the results of her EKG. If you will remember, Katy had an EF of 12 (normal is 55) just a few weeks ago. Her EF is now 31! That means that her heart function is improving. While she will still need to be followed, and medicated, for heart conditions, this means that she is improving and should make a full recovery! I AM SO PROUD OF HER!!
I want to thank everyone for keeping up with the blog. The blog will not end any time soon, though there may be a few missing posts due to our schedule. I will keep this going through Katy’s recovery, and I hope, one day, to turn the blog over to her so that she can directly communicate with all of you who have stayed with us through all of this. All of you, even those we don’t know personally, mean the world to us.
As we get closer to Katy coming home, I am reminded of how the work is just beginning. There is still the fund raiser at the Houston Museum on July 10th to get through. Our friends have put countless hours into setting up this event, and I know their hard work will pay off. The funds raised at this event are to help us get Katy the BEST prosthetics we can. If anyone wants to know more about the event, please post here, or e-mail me directly. There is also a sea of medical needs to process, and the shifting of mindsets to what will become the new “normal” at the Hayes house. At any rate, we will have our work cut out for us, but at least WE are doing it together. I will write more soon.
Love to all,