What a day! The exclamation on that sentence was for the good and the frustrating. Luckily, the frustrating was administrative and not medical. I hope that we are on way to resolving all the administrative issues, and keep heading towards the future. To their credit, the case manager, financial, etc were all busting their backs to get everything done. They really are trying hard to get things moving, and I REALLY appreciate it.
Katy enjoyed a good visit with my mom and step dad, ate a good breakfast, and her coughing has been getting stronger and stronger. The coughing is good, as I have said before, and she is getting so much better at coughing up the secretions that are in her lung. She is getting clearer every day. The reporter from the Houston Chronicle came in around 10am, and had a little time to talk before she went in to see Katy. Katy was very alert, talkative, and looked absolutely beautiful for her interview! My mom, step dad, a family friend, the reporter, and I had a nice lunch, and then I returned to the hospital for Katy’s rehab. Her rehab was after lunch today, and she did well, as usual. She was in her chair for another couple of hours today. The chair is good for her, but does cause her some pain because of the pressure ulcer on her sacrum. We usually position pillows to try and raise her off of the painful area. I am so proud of how well she is doing in PT/OT!
I met with cardiology, renal, burn, psych, case management, financial, rehab, PT/OT, and the dietician today. Whew! A lot of people are looking after Katy. Katy has not been allowed to have water due to her sodium being slightly low, but they added a little sodium to her feeding tube to see if they could boost to normal levels. If she maintains her level, then they will remove all dietary restrictions. She really enjoys eating fruit and salad, and eats a little of everything else, but mostly eats the fruit and vegetables. She is very anxious to get to the 8th floor. She wants to get through rehab and get back home….NOW! I love her tenacity.
I’m sorry I haven’t been writing as much lately, but I will try to get my word count up. I had a spell between the frustration last week, and the progress this week, where I was just TIRED. I am feeling a little better now, as I know that it is important for Katy for me to be able to keep my pace with all of the things happening. Aside from the blog, playing my guitar every night keeps me sane.
Early on in our dating, Katy and I spent a lot of time going to parks, preserves, hiking trails, etc, and really got to know each other on our long walks ans talks. Sometimes we would take out her boat that she used to own. This Donzi was a little 16′ jet boat, but was badly designed. The starter always jammed, it sucked things into its intake….something was always wrong with this boat, but we still had fun with it. Whatever the problem was on any particular trip, it usually ended with me in the water fixing it. One time, after the starter jammed, I had to swim across the river in Jonestown holding the tow rope, TRYING to pull the boat back to the dock. I’m sure it was a hilarious sight to see me towing a boat by swimming! Another time, we had gone out for a Winter’s morning boat ride. I had done a lot of work to the boat, and the boat had been running great for a while. We were cruising down the Colorado river, in 38 degree weather, when we sucked up some seaweed-tyoe river growth. It turns out that the unusually warm weather caused the plant life in the river to over-grow. We couldn’t see it until we were a mile deep into it, and we were now drifting. The fix, I had to dive into thhe COLD water (this part of the river came from the lowest part of Mansfield Damn) and unclog the intake. I WAS FREEZING as the wind hit me on the ride back. As much as our adventures were often a commedy of errors, they are still fond memories for us. We have always held to the belief that if you can’t laugh at yourself, then you can’t laugh at anything. We always tried to keep a good sense of humor, and Katy is still keeping her wonderful sense of humor through this experience, too. I will write more soon.
Love to all,