Seriously, today was a good day. Katy’s vitals stayed in the range we would like them too. Her temp did creep up a little at the end of the day, but a little fluctuation is to be expected. She was awake most of the day, and is getting much clearer at mouthing words and expressing her wants, discomforts, etc.
I actually got to meet with psych today, and, after a nice meeting, the psych doctor met with Katy. Dr. Martin and I discussed my desires for communication, where I felt Katy was at mentally, and many other things. She asked Katy if Katy wanted her to come by and visit her. Katy said “no.” When she asked what Katy did want, Katy looked at me. It almost made me cry tears of happiness. The doctor took a few moments to talk to her alone, and then came back with someone who could read lips. I had translate the first visit, but I’m sure that she wanted to talk to Katy without me there. I feel comfortable with that arrangement, so long as Katy continues to tell me she is OK with it. Katy did roll her eyes a lot when I asked her about the visit. She rolled her eyes and shook her head, but I am glad to at least have a second person make sure that Katy is processing this overwhelming life change.
I also met with Dr. Das, the doctor who will be in charge of cardiology for the next two weeks. He was a very nice man who took the time to discuss, in great detail, what is going on with Katy’s heart. The information wasn’t really new, but the detailed descriptions of what EF, leaky valve, etc was greatly appreciated. We, like with psych, discussed my expectations for communications, and what “reasonable” meant with regards to the time frame, and delivery, of information regarding Katy’s treatments. Cardiology seemed very willing to attempt to directly communicate with me in a timely fashion. Psych expressed a desire to calm the tensions that have risen lately, but did require a bit more explaining as to why I wanted to be so involved. Apparently, at least as I am told, most families are not interested in getting this level of information about their loved ones. I don’t know what the numbers are statistically speaking, but I cannot imagine simply trusting a complete set of strangers with my wife’s well being, and not wanting to know what is going on.
Katy’s EF is still at 10-12, but her heartrate, blood pressure, temp, and urine output are all right in line with what we need to see. Though it is not a guarantee, I feel confident that Katy will eventually overcome this obstacle. Katy i scheduled to have the trach put in tomorrow. This should make things easier for her to breathe, allow her to have less discomfort, thus reducing the amount of pain meds needed, and allow her to start trials for swallowing food. After a few days, they will be able to put in a trach that would allow her to talk. This will also remove one more obstacle from the path to Katy’s returning to Houston. Most hospitals will not take an intubated patient, but will take one with a trach. It is now my belief that the move to Houston SHOULD happen soon. I emphasize “should” because I believe that to be the best thing for Katy. Wish me luck as I communicate with the hospitals in the med center.
I want to say a special “THANKS” to Susan from Austin for the amazing CD’s! Susan sent Katy a lovely card, and 2 CD’s of Susan playing classical guitar. Katy, myself, and the nurse all loved listening to them.
I have told, via e-mail, that it is time for me to share another story. The day Katy and I got married was a madhouse! I had to get up early to go get the tables and chairs for the reception, Katy and her mom went to the salon to get made up for the wedding. I drove into Austin to get the chairs, drove up to Georgetown to set up the reception (with a LOT of help from Katy’s sisters and family), drove to Leander to get dressed with my groomsmen, and then raced (definition; drove dangerously fast) to get to the chapel for the wedding. I remember everyone coming in, I remember the JP arriving, I remember not being able to feel my legs. The time for the wedding to start came and went. Now I was worried! Apparently I paced up and down the aisle (I don’t remember too much from this snipet of time), but a few minutes after we were supposed to start, Katy arrived. Those minutes felt like hours! I took my place up front, and the signal was given that we were ready to begin. The music started playing, the doors in the back openen up, and Katy’s mother led her down the aisle. They got to the front, and the JP asked “who gives this woman away?” Katy’s mother replied, “I do.” Then I took Katy’s hand and we were to look into each others’ eyes while a song was playing. The song was SUPPOSED to be one that I had written and recorded for Katy. I had 3 other musicians in a studio for 2 days working on this song. We even added a string section. In spite of all that work, someone handed the lady running sound the wrong cassette (yes, cassette….kids, look in up on wikipedia). The cassette was our reception tape, and LUCKILY the song that was cued was Sting’s “Secret Wedding Vows.” One song in either direction would have yielded us staring at each other listening to “the Dirty Boogie,” or “Bad to the Bone.” It was the beginning of what would be a comedy of errors. Our life is often like that, but what keeps us going is our ability to laugh. Katy miscarried April 22nd, 2003, Amber’s birthday. The day she knew something wasn’t right, I called off from work, and we sat and watched comedy central. Of course we cried, and, as we often do, drank our hot tea while we processed the emotions of losing the baby at the 12 week mark. Ultimately, it was just another memory. We got pregnant with Jake later that Summer, and he has been terrorizing Amber ever since. I love Katy more every time I think of what an AMAZING mother she is. I may be the one whose crazy antics keeps our life a little more interesting, but Katy is the glue that binds our family. She is an influence on people very soon after they meet her. Several of her friends call her whenever someone is sick to see what oils and herbs to use. Whenever anyone is going through a hard time, they come to Katy, not just to relax, but because Katy’s energy when massaging someone is healing. The more I know her, the more I know that she is the best thing that has ever happened to me. Now I am just trying to repay the favor.
Love to all,