Even with my timeline all out of whack, Monday still feels like Monday when it comes to getting out of bed. That all changed when I got to the hospital. Katy is still breathing on her own, and her temp did not spike over night. She was alert this morning, and seemed to have a good night all around. I talked with the doctor this morning, and, if everything continues as it has been the last few days, I will be able to move her to a Houston hospital (provided we can get acceptance by a facility that can offer her the correct care) in the nest few weeks. The criteria would be based on, if in the next two weeks, Katy was still breathing on her own, nothing else pops up medically, she continues to improve with regards to lung health, no more infections arise, and her wounds continue to heal. I try not to be too excited, incase things change, but just the fact that we were talking about going to Houston made me happy. Honestly, I also felt a little pang of hurt. I’ve seen the staff at this hospital for more hours a day than I do most of my friends and colleagues. The nurses have been so good to Katy, and I will miss them. That being said, I cannot wait to be with my kids again. I also think it will good for Katy to be able to see her friends again.
Today was a busy one for all of the peripherals around Katy. She received a dressing changs and bath this morning, and then had a visit from the speech therapist. Speech therapy does the swallow test to see if Katy can start to accept food orally without breathing any in. Due to the congestion, and her sedated state, it was hard for the ST to tell how Katy did. She agreed to have me with her for tomorrow’s swallow test. I should be able to help her interpret for Katy, and Katy might be more awake if I am there. During wound care, they removed the VAC from Katy’s leg, removed the staples from her upper stomach wound, removed the suchers from her left arm, and changed to a different kind of treatment on her right arm. The new treatment involved using a ribbon soaked in sodium chloride (I hope I have that correct) that helps the body to expell some of the fluids in the wound. They also added this same type of treatment to her right leg wound. The VAC on her belly (the only VAC remaining) was changed today.
Physical therapy will evaluate Katy tomorrow during rounds. After that, they will meet with me to discuss what they think the plan will be, or if they even think she is ready. Katy’s liver enzymes stayed where they were, meaning that she is not reacting to the glutamine/probiotic mixture negatively. She is still on the probiotics, and I am thankful for that. She does have a bit of congestion in her lungs, and she coughs to try and get it out. Sometimes she doesn’t have enough force behind the cough, and they are able to suction it out. Though this isn’t a pleasant experience, having a small vacuum cleaner shoved into your throat, it does make it so much easier for her to breathe. I hope and pray that she continues with all of this progress.
It was very sweet of Lucille, Bill, and Pat to come and spend the weekend here. It was also nice for them to take me and the kids to dinner/breakfast. I really enjoyed seeing Amber and Jake, and I can’t wait for my whole family to be back under one roof. I know that I will be there before Katy, but, when we are all together, I feel that I can handle anything life throws at me. It is funny how that feeling changes when we are apart.
There are too many people to list for my “thanks” on this blog, but know that MANY people (including some of my students) have done such wonderful things for my family. Soon, I hope to have a get together and hug every one of you who have done so much for my family. Thank you all.
As part of my daily routine with Katy, I apply lavender oil to her, massage her, clean her face, place cold rags on her head, adjust her bed, etc. I gave her three massages yesterday. twice she fell asleep in my hands, nuzzling into my touch as I rubbed the lotion into her neck and shoulders. I know that the benefits of massage may be lost on “standard procedure,” but Katy would be wanting it, and it is nice to feel a physical connection with my wife. Even though she can’t yet speak clearly, words aren’t needed. On the last time I was massaging her, she told me that it had been so long since she worked on me. She asked if I wanted her to massage me. I smiled and told her that it was my turn to take care of her. Massage was not a job for Katy, but a passion. Her energy, her technique, her inate ability to find the source was not anything that can be taught at a school. Even though massage is not in her future (except for all the ones I will be giving her), I know that she will want to continue studying natural medicine, herbs, and homeopathic medicine. She is a great healer, and this will not stop her from continuing to do what I know is her life’s work.
It gets hard, sometimes, to select a story to share. As I have said before, some are very intimate, some are loaded with inside jokes, and some may involve other people who I would, out of respect, want their permission before sharing. That being said, life with Katy is never dull, and I am sure the same would be said of me. Even though we have had our fights about my travel schedule, or anything else that couple do, we never question our love for one another. The biggest part of our daily lives are our children. Amber, Jake, and Arielle are our world. Arielle having been born right before Katy was hospitalized will, I’m sure, add to the stories as time goes on, but Amber and Jake always keep us laughing. Sometimes, as parents, we have to act stern and redirect the kids, but then go to our room and laugh about it that night. We remember being kids, and enjoy watching our children grow…even if we sometimes miss them in the different phases of growing up.
I watched a show on TV called “RV Crazy.” It reminds me of our time living in the confines of a 35′ travel trailer, and how much fun that was. I saw a story on an RV named “Draco,” made by a man for his wife who suffers from chronic arthritis. This RV was amazing, and completely comfortable for the two of them. It makes me think of our plans to travel in an RV when we get older. Some of my favorite memories in our RV were our nightly walks. Katy, Amber and I would walk along a path behind the RV park. The path led between houses with horses and cows, and we would stop to pet the animals on our walks. We would see deer, rabbits, snakes, birds, dogs, cats, squirrels, and all sorts of insect. Amber learned to ride her bike in the park, and had her first “big girl” ride on the trail behind the RV. Life was simpler then, and that meant more time spent doing things together. We used to, all 3, curl up in the living room, and watch movies and eat popcorn. That has turned into a tradition with us. Movie, popcorn, hot tea. Stormy nights in a small space make movie and game night fun. You get to listen to the rain, a favorite of Katy’s, and spend time together. I can’t wait to do that again! I have my firefly DVDs all ready for when Katy is ready, and will stock up on Ealre Grey soon!
Love to all,