“In order to gain anything, one must first lose everything.” The Buddha
Katy’s fever stayed in the 101-102.5 range all day, at least until this evening when I left the hospital. I usually call the night nurse at around 11pm and check on her then. Her C Diff, and all other cultures, came back negative for infection. The doctors still have her on a few antibiotics to make sure, and they took a chest x-ray to check on her heart and lungs. She failed her SBT (spontaneous breathing trial), for a second time, due to hyperventilation. Her respiratory rate is coming down slowly, but is directly connected to her heart rate. Her blood pressure also rose a little today, but all of these numbers would have to stay in these trends for much longer than a day for anyone to say that these are a truly signs of anything. If she continues on this path, without recession, then we will have something.
Because of a text from a friend of mine in the medical field, I did ask the doctors about sever cytomegalovirus, Q fever, C reactive protein, AST, and ALP. There was no indication or positive results on any of those. Her CT scans didn’t indicate any viral infection, either. For the most part, today was spent with Katy sleeping during all but the 5 pm visit, and me doing a lot of administrative work between visits.
One positive outcome of today was me getting a little clearer definition of some of the terms and criteria used in Katy’s case. The word “sepsis” has different criteria depending on which team of specialists you talk to. While I won’t go into each of the different ways that the teams use, I will say that I now feel confident in what we will call the varying states of Katy’s progress. With regards to “sepsis,” Katy is in an in-between state. Of the indicators that would define her as being in sepsis, she is 1/2 positive, and 1/2 negative. It means that she is not in the clear, but making some progress. I was also able to start the conversation about what would have to happen for Katy to return to a Houston hospital. Unfortunately, the process is full of variables, each to an exponent of 100. Between Katy’s condition, the timing, the medicaid process, available beds, etc, the process is a lake of turbulent and murky water. I do feel strongly that Katy needs to get back to Houston as soon as is feasable, but onyl if we can get her into an equal, or better, facility with regards to quality of care. Anyone who knows anything about this, please let me know.
The QLS and Museum fund raising events are promising to be wonderful events. None of these, or all of the other events, would be possible without the time, hard work, love, and attention put into them by our wonderful friends. I know that Katy’s outlook on life can’t help but to be positive with the knowledge that so many are willing to give so selflessly. Thank you all.
Instead of a story, I want to invite all of you to do something that I ask all of my music students to do. I ask all of my new students to make me a CD. I ask them to imagine that they will be alone on a desert island for 6 months. There will be food, water, shelter, a cd player, and this CD. This will be there only form of entertainment that they don’t create while on the island. What is on the CD? Now, I’m not asking everyone to make me a cd, simpy to list what songs would be on yours. A CD can usually hold about 21-25 songs (WAV format). So, if you will humor me, list the songs, artists, and if it is a version that comes off a specific album/performance. I find that everyone’s playlist is usally acombination of predictable and surprising to anyone listening to it. So, take into consideration that this would be your ONLY music for 6 months. You would need songs for all of the emotions that might feel while in solitude. I won’t hold anyone to their list because what you would put on this list might change in a few weeks, but it is still, usually, a very interesting experiment. I will list mine below.
1. Gov’t Mule – Soulshine The Deep End Vol 1
2. KISS – Black Diamond KISS Alive
3. Kermit the Frog – Rainbow Connection The Muppet Movie
4. Lisa Ashby – Honest I Do Album still in production
5. Seth Walker – Steady Seth Walker
6. Allman Brothers – Whipping Post Live at the Fillmore East
7. Albert Collins – I Ain’t Drunk Live BBC Sessions
8. Johnny Winter – Its My Own Fault Live from Woodstock
9. Gov’t Mule – On the Banks of the Deep End The Deepest End Live
10. Louie Armstrong – What A Wonderful World 20th Century Classics
11. Nat King Cole – Cottage for Sale 20th Century Classics
12. Ace Frehley – Trouble Walking Trouble Walking
13. Jerry Lee Lewis – Lucky Old Sun Great Balls of Fire Soundtrack
14. Lori Carson – Fall In the Light Strange Days Soundtrack
15. Buddy Guy – Champign and Reefer Best of Buddy Guy
16. Eric Clapton – Old Love Unplugged
17.AC/DC Back in Black Back in Black
18. Back Door Slam – Real Man
19. Stevie Ray Vaughn – Dirty Pool Live from Carnegie Hall
20. Mozart – Requiem Amadeus Soundtrack
21. George Jones – He Stopped Loving Her Today Best of George Jones
22. KISS – Animal Sonic Boom
23. The Grateful Dead – Long Strange Trip Live from Munich 1972
24. Dr. Hook – Cover of the Rolling Stone Best of Dr. Hook
25. Jimmy LaFave – Never Was A Moment Texoma
I hope you all enjoy this little list making exercise, and remember, never let the music in your lives stop.
Love to all,