I left the computer up while I was doing some domestic duties (laundry, dishes, etc), and saw the screen saver when I came back. It says “Happy Mother’s Day.” I bought Katy the laptop for Mother’s Day last year, and just had to think that it was ironic that this computer is now my main means of communicating with the outside world about Katy. Often, as I type or use my touchscreen phone, I can’t help but think of all the things that will be difficult for Katy when she comes home. I read an article in the news about how the new interface for all technology will be sensors on our hands because the technology is getting to small for our fingertips, but that they want to make the technology even smaller. I wonder if the inventors of this technology ever stop to think about the disabled? I know that we will either find people who have developed ways around these issues, or we will design our own solutions to these problems, but I can’r help but to look at every physical act I do differently. Everything from the size of the elevator buttons, cellphones with touch screens (that are body heat sensitive), and so forth, have all made me try to think of things from the point of view that Katy will have when she leaves the hospital. It hurts me every time I see nail polish, shoes, and rings Interesting how these thoughts actually make me want to go clothes shopping with her!
Her temp rose a little this afternoon. She went as high as 40.1C (104.1F), and then came down to 39C (102.2F) after a tepid bath. I find it interesting that her temp lowers after baths, but doesn;t respond very much to Tylenol/Ibuprofen/Motrin. Another interesting thing to note is that the ice bags on her torso melted completely after 2 hours, while the ones on her head still had ice in them. I am going to bring this up in my meeting with the doctors in case this has any bearing. Also, Katy’s sweat is very sticky, almost like Vaseline. I am wondering if, due to this build up of sweat, her body isn’t able to release heat like it should? She is being bathed every day, but I don’t think they will scrub her clean the way she would. These are just some thoughts that I am rolling around in my head. I hope that through the process of all of this collective brainstorming (docs, nurses, me, blog-commentors), that we may find what is causing this fever to remain.
I had a great weekend with Chris and Kilee, and I am looking forward to more visitors this week. My mom and step dad, Chris’ parents, Katy’s mom, Pat, Amber and Jake are all coming up this week to visit Katy. Though I have relished my alone time (it helps to get things done quickly), I am glad for Katy that so many people want to come and see her. I am even more glad that everyone could work it into their schedules to do so when it was convenient for me also.
Katy and I used to own a Jeep Wrangler. I LOVED my Jeep! However, due to my job that required me to travel so much, the Jeep became impractical for me to drive. Katy and I switched cars so that I would have the better one for long trips, and she became the hot lady in the cool, green, convertible, rock-crawling SUV. It used to make my heart race when I would see her driving the Jeep with her blond hair blowing in the wind. We were living in Austin, and used to do a bit of off roading. When Amber was younger, she would get buckled in to the back seat as my friend Jason and I would go on our rock crawling afternoons. For those of you who don’t know, rock crawling is the kind of off roading where you put your vehicle at very scary angles (very slow speeds) so that you can climb up steep, rocky, embankments. Amber would play Barbies in the back seat while we went through miles of trails. One day Amber and I saw a school bus that had slid into a muddy ditch and had gotten stuck. Amber saw this and said, “If that were a Jeep bus, they wouldn’t have gotten stuck.” So our family used to go on what I liked to call “combined interest” trips. I wanted to off-road, Katy wanted to see nature, and we both wanted to spend time with Amber. So we would load up the Jeep and head to places where we could fit all of the above in. We used to go to Reimer’s Ranch, the Slab in Kingsland, and several other places.
The “Slab,” in Kingsland, TX, is a famous off-roading spot in a river bed in Southwest Texas. We went with some friends of ours, and made a day of the road trip, off roading, swimming, picnicing, and hiking. We pulled off the raod early that morning and prepared the Jeep to go off road. We disconnected the sway bars, underinflated the tires, took the top off, attached the tow chains, and applied the sunscreen. By this point in our Jeep ownership, Katy had become pretty good at helping me navigate obsticles, and even started suggesting places where I could roll over something with my tire and show off my Jeep’s suspension. We drove through a river that was as deep as the top of our headlights, and then crawled out on to a long, sandy plain. We stopped to tow another Jeep that had gotten stuck, and they returned the favor when my ego became bigger than my tires. We made camp at a big outcropping of granite along the river, and hiked up the natural staircase to see the scenery and wildlife. When we got around to getting in the water, we made a great discovery. The rocks (after years of water running over them) were as slick as a slip and slide. You could, carefully, crawl out into the rapids, hold on to a big rock, get positioned, and then let go. It was like a 50 yards long slip and slide…on steroids! We took turns going first, and then catching Amber when she would go. We hiked around the area that afternoon, and then started our trek back to the road to get the Jeep ready for street driving. Our friends had a 4 wheeler with them. We learned, thanks to two very zealoud game wardens, that if you SIT on a 4 wheeler that isn’t running, without a helmet, that they will give you a $50 ticket…even if it isn’t running. I guess every day has to have something like that to remind you of how perfect the rest of the day was. We made our way back to Lakeway (where we were living), and pulled into our driveway. We both started to get out (like all kids, Amber was sawing logs in the back. I still don’t know how she slept in that Jeep), and then we both went, “OWWW!” It turns out that, as smooth as those rocks were, if you slid 50 or 60 times, you developed a nice collection of little cuts along your backside. We spent the next 3 days appying ointment to each other’s South sides ever time we were home. Those times have always been some of our favorite memories. We lived very simply, then. We lived in an RV. And I learned that, when you don’t have a big house to fill, that you start to value doing things over working to buy things. Katy and I still want a motor home when we are older. She is not as prepared to live inone fulltime, but we agreed that traveling by motor home is something that we want to do. We also agree that behind our bio-diesel, solar paneled, LED lighted (for conservation of energy), motorized love nest will be a JEEP wrangler.
Love to all, and don’t forget the dreams that you held dear early in your marriages…