Not much has changed today. Katy was stable, and awake, all day. She is still running a fever, but it is in the 102-103.5 range now. Shw was breathing more rapidly, and I talked with the repiratory tech and doctors to find out why. For now, the concensus seems to be that the trauma of all the treatments, the spleen, and the recent removal of the fluids from her pleural cavity seem to be causing them. The antibiotics may or may not have any effect on her temperature, as well. The rapid breathing may also be from pain, and is partially from the ventilator. It was explained to me that the rhythm of the machine and Katy’s natural rhythm may not be in sync with one another. The ventilator “breathes” in perfect cadence, while we do not. For now, we will wait and see how she progresses. She will have her J line changed tomorrow, and her VACs will be changed on Friday.
Today is the second full day of Katy being aware of her amputations. She knew before, but, due to medication, would have to be reminded the following day. I’m sure the neds play some part in her amnesia, but I also feel that part of it is Katy’s defense mechanism from the pain of knowing about the loss of her limbs. She is taking it well, and I talked with her about the possibility of biomechanical prosthetics. The doctors have incresed her protein in anticipation of her starting PT. I am actively hunting for an accute care facility in Houston that will take Katy. My friend’s father in law is on the board at Methodist, so we are trying to see if any doors will open there. The problem is that if Katy receives one day of accute care in Dallas, Medicaid won’t allow her to transfer to Houston. It doesn’t matter if the hospital is better, if that’s where she lives, family, etc….its one hospital, and one hospital only. Trying to time this will be tricky. The case manager will be very important once I get a contact name at the hospital that I would like for Katy to go to.
Katy’s lower abdominal wound is healing well. Once the dead tissue was removed, part of her intestines are exposed. The VACs are helping her body to rebuild the missing tissue. She will have to have 2 skin grafts (that we know of), but those should heal in under a week once they are performed.
The news stories are traveling around the country. The story that ran in Dallas was seen in Dallas, Houston, East Texas, Michigan, and was on the MSNBC website. Hopefully, by spreading the word about this infection, we can help prevent it from affecting someone else. I have received some conflicting information on this infection, and I’m trying to make sense of it all. Most of the doctors have told me that this infection is rare, and all but extinct in the USA, but the CDC says that it is on the rise, and has been since 1987. Some people that have e-mailed me told me that, since hearing our story, have asked their doctors about this. In a lot of cases, the doctors had given the women antibiotics (without telling them) to prevent this. When Arielle was born, we HAD to submit cord blood because the state of Texas requires it. If this is on the rise, then why weren’t we at least told about the possible need for antibiotics? The majority of cases seem to come from C-sections in hospitals, and most of the remainder come from births that occur in places such as outdoors, cars, etc (assuming I can trust the AMA web site). I’m not sure what I am looking for here, but it is bothering me that the American OB/GYN, AMA, CDC, Texas Health Dept, and US Health Dept can’t seem to have similar facts on their websites. It is a concern to me because (even with our views on “modern” medicine), we would have done the antibiotics had we known. As far as I can tell, Katy was not given any when Jake was born 6 years ago. Just something that has been running through my mind….
In response to the many e-mails I am getting worried about me taking care of myself, thanks. I will tell you that I am eating, trying to sleep, and getting a little exercise. I have been visiting the local driving range for an hour a day. It is inexpensive, and is really nice to get out in the sun for a while. My golf swing is so bad that horible golfers say, “that guy sucks!” Still, it is therapeutic to go and hit something every once in a while. Several people have also been asking about how I “feel” during this ordeal. I am holding up. I’m sure that once we are back in Houston, and I have had time to process this, I will have several emotions to deal with, but for now I am hanging in there.
When Katy and I were still friends, we decided to go out one night and check out Storyville at Dessau Music Hall. Storyville was an all star Austin blues band, and had members from the Arc Angels and Double Trouble. George Devore and the Roam, and Beth Black opened the show. It was an incredible show. The atmosphere was perfect for the music, and we talked all night over some beers. Through our friendship we had talked about everything under the sun. I know that I really looked forward to our time together, and was probably doing a bad job of hiding the fact that I really liked Katy. During Storyville’s set, they played the song “Who’s Left Standing.” I couldn’t take it anymore. I pulled Katy out on to the dance floor and we danced to the song. For the first time I held her close to me. I remember us both shaking as we realised that something was happening between us. We would pull apart and look at each other, and then we dance close again. The song became one of the first songs to be “ours.” Its meaning to us wouldn’t be understood by anyone not there that night, but know that it still puts back on that hardwood dance floor holding her every time I hear it. So much was happening to the both of us in our lives, yet this song made it all seem conquerable. I am sure that it was at that moment that we both gave into the love we were feeling. So when we renew our vows in 2012 don’t be surprised if you hear that song playing.
Love to all,