Dear Family, Friends, and Wonderful People We Haven’t Met…Yet,
I had a GREAT conversation with Katy this morning (her – non verbal). She smiled, laughed, cried, moved her head…it was great to see her so aware! She went in to surgery around 11am, and was done 2 1/2 hours later. As is the case every day, we got a little bad with the good. Unfortunately, they had to amputate to just above both knees. Though it was not what I wanted, it was needed. They were ablt to close the wounds on her legs, and they will do her arms on Wednesday. They believe that they will have to take a little more of her left arm (just above elbow), but say her right arm is looking ok. They won’t know for sure until they do the procedure.
Now for some promising news. They did not do the trachiostomy because the doctor believes that she will be able to breathe on her own by next week. Once again, we won;t know for a few days, but she is showing progress. She is responding well to the dialysis, and is producing clearer fluids. Her blood pressure and heart are looking appropriate for her post surgery.
I checked in to an apartment through a charitable organization. I will be moving out of the hotel in the next 2 days. The apartment will allow for my kids to come see me, and is, incredibly, cheaper than the hotel. It is furnished, and has laundry facilities, etc.
Cool award for the day goes to Ruth. Her dad is a fantastic rehab doctor and has been gracious enough to send info our way. After a dead end while talking to the social workers (they said she couldn’t come back to Houston), Doctor Purdue agreed that she needs to be in Houston for rehab and said he would sogn off on it when the time comes.
Today was a LONG day. Not in the amount of hours, but in the mental and emotional load on me. It was difficult to not feel divided as Katy was in surgery, dealing with errands to complete legal paperwork, the apartment, coordinating issues at home, and trying to find time to eat! So with that, I am going to actually try to get a solid few hours sleep. Remember to tell everyone that you love that you love them. No matter how healthy you are, no matter how careful you are, no matter what you do- you will never see it coming if something like this hits you or a loved one. Also, please take the time to have some uncomfortable conversations with your spouse. It is too easy to say “unplug me if…or do this if,” but very rarely are the decisions we have to make all or nothing. I have talked with so many families in the ICU that are dealing with these issues. They all have “rare cases,” and most are trying to find a path to what their loved ones would want, and wishing they had talked about it in advance. Thank you all for giving me the time to be with my beautiful Katy.
Love to you all,