I want to start off by saying that I am sorry for not replying directly to most of you. I have read EVERY e-mail and post, and I have researched and taken into consideration them all. I have had so many replies, through all the various communication channels, that I couldn’t possible answer them all. Thank you all for taking the time to send me the info.
I’m at a loss. There are so many decisions that are being pushed at me, and no where near enough answers to the questions. Unfortunately, the time frame before Katy starts going backwards is rapidly approaching, and I am flying blind. So many of the options would require a miraculously quick response from individuals and organizations that might be able to help. I have contacted the case managers for 3 hospitals, put all of my questions before the current doctors, and researched several dozen websites. I am not sure why the move to Dallas was made. I was led to believe that Katy would have treatment options not available to her in Houston, but I am not seeing that to be true. I now feel that she is recieving the same quality of care she would have gotten closer to home, and that the move was a lateral one at best.
The time frame for something to occur is 48 hours. If nothing happens in that time to sway the options, in one direction ot another, then I have to concede to the amputations. I, in my heart, do NOT want that to be the case. I asked the doctors for at least one alternative to the surgery, and they, as of yet, have been unable (or unwilling) to offer any alternatives. This is 100% unacceptable to me. I have suggested hyperbaric oxygen, uv, removing the clots, blood thinners, physical stimulation, hydro therapy…none of which they are capable of or willing to do.
I’m sorry to vent in an open forum, but my mind is racing, right now. Sleep is not going to come easy, but I need to be rested so that I can advocate for her. Please send any suggestion to firstname.lastname@example.org. The hospital does not offer wi-fi, so my phone is my only source of outside contact while I am there. Say a prayer for Katy, and another that I make the right decisions. I need all the help I can get.